Mommy: On Deck... 4 days in a row at Children's

So, even though our appointments on Friday didn't exactly turn out as planned, we did come out of it with a much clearer image of the week to come:

Sunday (Tomorrow): SNOW DAY!!!!! I'm SUPER excited to hunker down, and have a day in with the family. This will be my 3rd day since the 17th of November where I wasn't at work or the hospital, and I'm SO ready! We'll be spending the day tidying, decorating, and baking while we watch the snow :-)

Monday: The only normal work day - except I have a bunch of stuff to do at my company after my normal project.

Tuesday: I get to go in for the first part of the day, but at 12:45 we have a sit-down appointment with the oncologist. I literally have 4 pages of questions all set and ready to ask about the diagnosis, classification, treatment, and long term effects of all of this.

Wednesday: We don't know the time yet, but Cambria will be back in the surgery clinic. She'll be under general anesthesia again, and this time she'll be getting a portacath put in so we don't have to keep putting IVs in her tiny little veins. While she's under, they'll also be taking a bone marrow sample. They'll call and tell us what time her appointment is Monday or Tuesday (they don't like to assign times to planned procedures like this as there's so many emergency and urgent cases that may take priority)

Thursday: At 10am we'll be at Children's once again, first she'll get the radiated iodine injection for her MIBG scan the following day, and then at 10:30 she'll get the CT scan of her lungs.

Friday: Finally we have the MIBG scan, which is the full body radiated iodine scan. We'll give her regular, non radioactive iodine drops before and after the scan to make sure her thyroid glands aren't tempted to suck up the radioactive stuff, where Neuroblastoma cells will be free to gobble it up. This will show if there are any other "hot spots" somewhere else in her body.

phwew!!!!! After all that I'm pretty sure we'll be ready for a nap!