Cambria was a normal, happy 4 month old going to her 4 month checkup when our world changed.
This was not a story we expected to be a part of. When this all started we still thought pediatric cancer was something rare - something from books and TV.
We didn't even realize babies could have cancer.
What Cambria has is called a “Neuroblastoma”, the most common infantile cancer. I'm updating this page now that Cambria is done with treatment, and approaching one year of clear scans. We have been SO blessed!
Mommy's Perspective:
- 4 Month Checkup
- Our First Trip To Children's
- The First Day Of Many Phone Calls
- Biopsy Day
- It's Official... Neuroblastoma - aka Holy Cow Our Baby Has Cancer
I will keep you precious Cambria is my positive thoughts.. I know all too well what you are going through.. At birth we were told our newborn son had cancer..Neuroblastoma 4s. It was a rough road.. he was an amazing warrior from day 1. He had treatment for the first few months of his life.. and they thought it was good enough to make this disease go dormant. Then about when he was 4mos I was nursing him and felt a bump on his head..same coloring as his rib one when he was born..so we started treatment again until he was about 1 year old. We thought we has licked this horrible disease.. we had about a year of "remission" I dont think he ever was.. and had a recurrance 8/12..he then was back in with intense treatment was responding well and took it like a champ until he becoming symptomatic (complex situation) and he was in need of a surg to continue his treament and be part of a study to hopefully cure him..after going back and forth on wether to do the surg or not and my mommy intuition.. and knowing the odds of not conintuing as I work in the cancer world... we did it and lost him due to a complication in surgery march 2013.. I'm not trying to scare you but I wonder everyday that if we had done the treatment right" in which I dont know what that would be... in the first place when he was a baby instead of them guessing how much would be enough..would it have came back? I can't tell you how much this experience and changed my life.. we have to live with out our magical... son who was FULL of love, light and strength. He is our everything our world.. and this is a nightmare no child or parent to have to go through. I wish you well and will send your daughter positive healing thoughts.
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