Tuesday, December 17, 2013

Dad: The Really Heavy Good News

I said "good news", really thats not fair.  It's great news. Amazing news.  We took a barrage of tests last week, and we got all of the results yesterday.  They all came back negative, as in her cancer has not spread to her lunges, her bone marrow, or anywhere else.  Thank the Good Lord for he is kind.

However, that was covered in the first 10 minutes of about an hour long consultation.  The very next thing that was covered was the 4 chemo therapy treatments that will be used on my 5 month old daughter (she just turned 5 months yesterday).   This will likely take 3 to 6 months and it will be atleast 4 two day sessions with a 3 week gap between them.

My wife being the researcher that she is had about six pages of research about these particular chemos, as they had been mentioned by Doctor Meany before.  Included on that list of chemos was a host of potential side effects. Granted the doses will be small and 3 weeks between sessions is very good, still she will be partaking of something called Doxo in January.  Doxo is by all accounts formidable, in both the good ways and the bad ones.  

So, I've been kind of focusing on the bleak this morning.  I'm in one of those moods where I want to put my shoulder down and push through as many obstacles as appear in my path.  However, yesterday wasn't all bleak.  The meeting started out yesterday with Doctor whatsherface (none of us can seem to remember her name).  She is currently in her fellowship with Children's hospital and seems to be training under Dr. Meany.  She seems to be very competent but a little stand off-ish next to Meany.  Anyway, Whatsherface was talking to us about the tests and such while Dr. Meany was down the hall dealing with one of the loudest children that I've seen since my nephew who is...impressive.  After about 10 minutes Meany pops in and starts covering the plan for chemo.  Another 15 minutes later an RN drops by and sort of stands in the corner for a while.  We though she was waiting to talk to one of the Doctors, but she was there to see us as well, she is Liz (ha, I remembered a name!) she will be around through chemo and wanted to say hi.  Then another RN pushed her way into the now crowded room, we are going to say her name is Jessica (which might be right...possibly).  She's kind of queen of the nurses and wanted to say hi as well.  Everyone seems to be very intelligent and kind, and when everyone is enough to pack out an examination room, it's a good feeling.

The appointment finished up with having her port accessed.  This basically involved poking a needle into a spot just below Cambria's right shoulder where she rescently had surgery.  She screamed her head off for about 15 minutes.  Now everyone thought that it was because of the needle that she was angry.  I know better, she was pissed about being woken up, and she doesn't like being held down.  Anyway, this was no fun and afterward I need a drink (Dogfish head's 60 minute in this case).

This has been a bit more of a serious post, and I wanted to finish with a few things that I'm thankful for:

Our Pediatrician who found this thing when it was so small that Dr. Meany and Dr. Whatsherface could barely find it when they new where it was.

Children’s, for whom we have had more confidence in with every interaction which is no small accomplishment, when I would very much like something tangible to be mad at right now.

You guys, this blog has now been accessed by 1,292 unique ip's in 10 different countries.  It is a huge blessing to know that we are not alone in this.

Also, through a website that was set up by my amazing cousin, Ashley, we have recieved $2,450 with this my wife has been able to stay home from work and attend appointments.  Thank you for my wife's sanity.

Our God is an awesome God

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