Thursday, February 27, 2014

Dad: One more time, Loud as you can, How does it go?

It's a weird feeling of excitment and apprehension to be so close to the end and at the same time be staring down the hardest chemo session yet.  Kinda like the final boss in a video game.  The reason why we were more worried about this session then others was because it includes the carbo, which messes with baby girl's stomach, and doxo, which REALLY messes with her stomach, and etopo which is actually not hard but it is a three day thing, so we have to keep going back.  Anyway, the day wasn't so bad yesterday.  Only took about 9 and a half hours.  That may sound like a lot but every other time the long day has been more like 14.  Anyway, started off with a trip to dunkin' donuts.  We wanted to celebrate having this be her final session with a gift to the nurses and let me tell you, those skinny little nurses can eat.  Anyway, after waiting for a few hours for the pharmacists to brew up a steaming batch of chemo we finally got started.  We had several nurses come in just to say hi.  I think bribing them with donuts and bagels inspired some of their patronage,  the 18 lbs. 4oz. (that's right kids, she's a giant baby) of undeniable cuteness didn't hurt.  On that particular ADHD distraction: during the check-up portion of the days festivities we found out that she is now 28 in. long.  She keeps getting confused for a kinda quiet 1 year old.  It used to be a kind dumb 1 year old, but she's playing with talking-esk sounds again, so that helps.

Anyway, back on topic: we didn't have to do the pre-chemo fluids, and we only needed to do about 2 hours of post fluids. So that mostly accounts for the shorter time.  So, during the 8 hours during which we hung out in the Pod here is a description of the tom foolery that ensued.  First off we were in Pod 1 which is the one that they've made space themed through some rather well done artwork.  Yeah, they went old school and used paint instead of fat heads.  They also hid their little bear symbol in the decorations periodically.  The pod is divided into 4 smaller rooms where the patients hang out and a central area for the nurses.  The central area has 2 hidden bears.  Our room and two of the other room have 2 bears in each.  The fourth and final room only has 1.  What are you guys trying to do to me.  I probably spent 45 minutes staring at the walls like an idiot trying to find the second bear in their.  Seriously making my OCD twitch. grumble grumble grumble.

In other news, we also played a new card game as sponsored by my sister and brother in law called love letters.  Which I very much enjoyed, although Debra slaughtered me and mom.  I have also dubbed my mother the Great and Powerful Maz.  umm... i think that's all the stories of tom foolery.

We got home and Cambria wasn't feeling well.  This was as expecting but that doesn't make it any easier.  She did better then during session 3.  A couple of little throw ups, but you could see that she's a bit older and smarter then she had been, because she opted to skip dinner and go straight to bed.  Previously there was nothing in the world so important as to convince her to skip dinner.  Anyway, at about 7 we gave her her second dose of Ondenestrum (probably spelled that wrong, but thats her queasy stomach meds).  She then told us it was bed time (via practically passing out down stairs), but gave me hell for the next hour and a half.  I'm pretty sure I fell asleep before she did.  Debra had to poke me in the face for several minutes to get me to wake up and put her down.

That is the last long day of chemo, she will, God willing, never again recieve doxo, carbo, or cyclo.  Our God is an awesome God.

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