So last week I was really working on catching up with the blog.... and I only got so far as the day before her 3rd round of chemo... As she's about to start her 4th and final round next week... I think I need to just call it a day and post what I have. Thankfully Derek did his duties and posted. I'll throw in a bunch of pictures at the end of the post.
It’s been quite a month so far… and I think I’ve processed enough to share it all.
Things started going a little off plan on Sunday the 2nd (and no, I don’t mean we ran out of chips for the Super Bowl) Gaye called up and let us know that Bohden (our nephew) was sick and as they were staying together she had been exposed. As she was scheduled to fly down the next day, this was a bit of a hiccup. But Gaye already had a few contingency plans in mind for just this sort of thing, so she called in reinforcements! Aunt Tami lives relatively close (a 5 hour drive… but it doesn’t require a plane, so we’ll call it close). Normally, Tami both spends a lot of time with her young nephews, and works with childcare for BSF, so she’s typically quite the carrier monkey. However, due to TWO snow storms, and a few other things, she had been kept out of both for over a week. We’ve been praying for discernment and confirmation about Cambria’s treatment, and here we saw that God had been preparing Tami to be ready and able since before we knew there was a choice to make. Anywho, so as Aunt Tami is awesome and willing to drop everything to hurry up to us and help us through a week of chemo, she was all set and ready to head up Monday morning. Next up, Cambria was set to get her Bactrim medicine again (groan) so far both of the weekends we had given it to her, she immediately got super grumpy after taking it (she only takes it twice a week to prevent her from catching a specific disease). I was sure it wasn’t making her feel too good, so we called the on call oncologist (say that 10 times fast) and asked if there was something we could have her take instead. She said we could skip the second dose, and she would email Dr. Meany. The third thing that happened Sunday, was that we got a call giving us an appointment reminder for Wednesday morning… We had Tuesday written down everywhere… Thing is, as amazing as all the staff that we interact with has been at Children’s, the automated appointment service has been… we’ll just say “less than reliable” so we thought we’d call in the morning and get it changed. Next up Derek’s phone went kaput (which was especially a pain because I can’t bring mine in to work) BUT we did find a great vet who kennels cats super nearby our house, so Puck was able to stay with them during Tami’s stay as she’ssuper allergic, and Puck is a LOT of cat. (Thank you Gaye for the idea!) Oh, and there was talk of snow and ice for Monday afternoon (fun!) After all that we watched the stomping that was the football game and went to bed!
Monday morning came around, and guess what – the chemo WAS supposed to start on Wednesday! So we rushed poor Tami up early… but at least I had another day of work that week, and we got to have some nice visiting time with her before the treatment got started. Sprint gave Derek a crazy runaround with his phone (not even going to go there) but thankfully Beth came to the rescue (cue the trumpets) and gave us an old Sprint phone that we were able to activate. So we’ll still need to address the whole phone situation… but not yet >.<
Tuesday Derek thought he was getting sick, but thankfully wasn’t (just really dehydrated)… although he *really* needed sleep and non-taking-care-of-baby time, so it was a really neat perk of having Tami there early, as she was able to take care of little girl while Derek slept it off.
Wow… I feel like I’ve written a full post, and I haven’t even gotten to the hospital yet!
During fluids she was having a lot of fun playing with those ever elusive feet:
Here's what her chemo pole and machinery look like:
Meanwhile, she's been enjoying her nighttime routine, mostly because of the books :-)
She's also started playing peek-a-boo with us:
During fluids she was having a lot of fun playing with those ever elusive feet:
But she got to sleeping pretty good :
Since we have started to accept that she'll be immuno-compromised for a longer period of time with the 4th round going to happen... we decided she needed more floor time to work on crawling and just more independence... so we built..... baby cage!
I *do* share her sometimes during treatment... but only with her dad :-p
Thankfully the last 2 days are short, easy to get her to sleep right on through them.
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